- NORD: Proteus Syndrome
Offers synonyms, a general discussion and further resources.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Proteus%20Syndrome
- Proteus Syndrome Foundation
Support and education for families and professionals. Includes abstracts, brochures, glossary, links and newsletters.
http://www.proteus-syndrome.org/
- The CaF Directory
A definition of Proteus syndrome, its inheritance pattern, pre-natal diagnosis and a support group.
http://www.cafamily.org.uk/Direct/p50.html
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