- Ben's Dream
Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
http://www.bensdream.org
- Bennett Children's Foundation
Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
http://www.helpachild.net
- NORD: Sanfilippo Syndrome
Offers a list of synonyms, a general discussion and further resources.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Sanfilippo%20Syndrome
- Pediatric Database
Offers a definition, the epidemiology, pathogenesis, clinical features, investigation and management.
http://www.icondata.com/health/pedbase/files/SANFILIP.HTM
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