- NORD: Shwachman Syndrome
Offers a general discussion, the synonyms and further resources.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Shwachman%20Syndrome
- Pediatric Database
A definition of Shwachman-Diamond syndrome, the epidemiology, pathogenesis, clinical features, investigations and management.
http://www.icondata.com/health/pedbase/files/SHWACHMA.HTM
- Shwachman Syndrome
A mothers story to diagnose this disorder before a team of doctors could.
http://www.chariot.net.au/~dna/angelica.html
- Shwachman-Diamond America
Profiles SDA, a nonprofit that educates doctors and families about shwachman-diamond syndrome and also supports research.
http://shwachmandiamondamerica.org
- Shwachman-Diamond Syndrome International
Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical information available.
http://www.shwachman-diamond.org/
- The CaF Directory
A definition of Shwachman syndrome, its inheritance pattern, pre-natal diagnosing and a support group in the United Kingdom.
http://www.cafamily.org.uk/Direct/s24.html
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