- A Diary about Marfan's
Marfan's patients diary of the diseases events in her life. Includes a list of links.
http://www.angelfire.com/ms2/CysticFibrosisMarfan/standingtall.html
- Canadian Marfan Association
Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.
http://www.marfan.ca/
- Central Ohio Support Group
Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.
http://www.homestead.com/marfansupport/
- Children's Heart Institute: What is Marfan Syndrome?
Includes information on heart, skeletal, eye, other, causes, risks, management, and Surgery. Assisted by many graphics and a "tour" to help understand the disease.
http://www.childrenheartinstitute.org/educate/marfan/marfan.htm
- Congenital Heart: Marfan's Disease - Yale
Sole discussion of the heart issues and includes some video footage of echocardiograms and other heart studies.
http://www.med.yale.edu/intmed/cardio/chd/e_marfan/
- eCureMe.com -- Marfan's Syndrome
Description, symptoms, diagnoses, treatment and other information with a couple of similar disorders for comparison.
http://www.ecureme.com/emyhealth/data/Marfan's_Syndrome.asp
- eTenet - Marfan's Syndrome
Definition, description, symptoms and even treatments are covered here. There is also a list of questions one should ask their doctor.
http://www.etenet.com/Apps/Library/Corporate.asp?ID=607
- Living With Marfans
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
http://jrmarfan58.com
- Marfan Syndrome
Comprehensive guide to this connective tissue disease.
http://www.ygyh.org/marfan/whatisit.htm
- Marfan Syndrome: Does Diet Play a Role
Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet. Also examines this role in other disorders.
http://www.ctds.info/marfan.html
- Marfan's Syndrome: Information and Support
Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room, scheduled chats with professionals and links to its own Yahoo Support Group
http://www.marfanssyndrome.net
- Marfan-List
Information about an e-mail mailing list. Also includes links to other online support groups.
http://www.marfan-list.org
- National Marfan Foundation
Providing accurate and timely information about the disorder to patients, family members and physicians.
http://www.marfan.org/
- Slovak Marfan Association
The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
http://members.fortunecity.com/marfan
- Stanford University Marfan Center
Research, testing and care for Marfan Syndrome and related connective tissue disorders, with a list of FAQs.
http://marfan.stanford.edu/
- Virtual Support Group
Personal stories. Also includes links to major Marfan support sites and a guestbook for patients and their experience.
http://marfan.50megs.com
- Yahoo! Support Group
Started by a person with the syndrome, this site offers support for any person with the disease as well as family of the person.
http://groups.yahoo.com/group/Marfan_Syndrome/
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