- Polish Marfan Association
General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
http://www.marfan.sprint.pl/
- Slovak Marfan Association
The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
http://members.fortunecity.com/marfan
- Stanford University Marfan Center
Research, testing and care for Marfan Syndrome and related connective tissue disorders, with a list of FAQs.
http://marfan.stanford.edu/
- Swedish Marfan Association
Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
http://user.tninet.se/~sda301a/
- The FBN1 Gene Mutations Database
Focuses on the gene that is believed to cause the syndrome. Includes links to software and general information about the disorder.
http://www.umd.necker.fr/Site%20Marfan/01AHOME%20PAGE.html
- The Lavin Family and Marfan's
Personal experience with the cardiac aspects of the disease, along with familial diagnoses.
http://www.jarlath.co.uk/html/marfan.html
- Theresa E. Pageau - A Memorial Tribute
A tribute to a patient with this disease accompanied by information and links related to donating.
http://solo23.abac.com/billrobert/Theresa/theresa1.html
- Virtual Support Group
Personal stories. Also includes links to major Marfan support sites and a guestbook for patients and their experience.
http://marfan.50megs.com
- Yahoo! Support Group
Started by a person with the syndrome, this site offers support for any person with the disease as well as family of the person.
http://groups.yahoo.com/group/Marfan_Syndrome/
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