- Chrissy & Friends
Non-Profit organization that has support groups for children and teens with epilepsy and parents of children with epilepsy support groups in the NYC area.
http://www.chrissyandfriends.org/
- Doose Syndrome
This is a group about doose and it has links to other websites but almost all information can be seen by non members of the group.
http://groups.msn.com/doosesyndrome
- Epilepsy Bereaved
Information about SUDEP and other epilepsy deaths. Bereavement support and information on SUDEP research. Free booklet for young people with epilepsy.
http://dspace.dial.pipex.com/epilepsybereaved/
- Epilepsy Community
Message boards and chat dedicated to sharing information, offering support, and coping strategies to better manage this disease. Community moderated by volunteers.
http://community.healingwell.com/community/?f=23
- Epilepsy Support
Maintained by someone with the disease, this site offers support, advice, and useful links.
http://www.epilepsysupport.org.uk/
- Epilepsy Support Group
Providing world wide support for people with epilepsy. Includes FAQ's, links, support groups and a pen pal site.
http://www.geocities.com/epilepsy911
- Epilepsy Surgery Club on Yahoo!
Details about this group which is for those who have thought of (or had) having brain surgery or Vagus Nerve Stimulator surgery. Registration required.
http://groups.yahoo.com/clubs/epilepsy_surgery
- Epilepsy-l: Epilepsy support group
An E-mail based support group for people with epilepsy and those who care about and for them.
http://home.ease.lsoft.com/Archives/Epilepsy-L.html
- Lafora body disease research talk
This is a site about lafora body disease it has a message board and a links page.
http://groups.msn.com/laforabodydiseaseresearchtalk
- People Incorporated Epilepsy Services
A guided independent living experience designed to prepare adults diagnosed to live and work on their own. Includes services, history, gallery, opportunities and FAQs.
http://www.orgsites.com/mn/epilepsy
- Yahoo! Clubs: Epilepsy Support Group
Supportive club to help those with this disease. Includes free membership, message boards and chat room. Also joining instructions.
http://groups.yahoo.com/clubs/epilepsysupportgroup
- Yahoo! Groups
Yahoo! Directory: As of the entry date, there are 103 epilepsy groups on Yahoo!
http://dir.groups.yahoo.com/dir/Health___Wellness/Support/Diseases_and_Conditions/Epilepsy?
- Yahoo! Groups : adultswithepilepsy
This club is for adults (those 18 and older) to discuss their experiences with epilepsy, including causes, treatment and coping skills.
http://groups.yahoo.com/group/adultswithepilepsy/
- Yahoo! Groups : childhoodepilepsy
This mailing list is intended to support parents and other care-givers of children diagnosed with a form of epilepsy.
http://groups.yahoo.com/group/childhoodepilepsy/
- Yahoo! Groups : Dating-and-Married-Life-with-Epilepsy
The purpose of this group is for people to discuss issues that come up when they are dating and when they are married. How do we handle different situations? Are we embarrassed? How do our children handle it? Are people scared of us? etc....
http://groups.yahoo.com/group/Dating-and-Married-Life-with-Epilepsy/
- Yahoo! Groups : doosesyndrome
For parents of children who have, or who may have Myoclonic-Astatic Epilepsy, otherwise known as Doose Syndrome, a rare, severe, intractable epilepsy of early childhood.
http://groups.yahoo.com/group/doosesyndrome/
- Yahoo! Groups : epilepsy
For people with or know someone with Epilepsy. A place to talk, share stories, and for moral support. All ages welcome.
http://groups.yahoo.com/group/epilepsy/
- Yahoo! Groups : Epilepsy-Kids
Epilepsy-Kids offers support and information for parents of children diagnosed with any form of epilepsy.
http://groups.yahoo.com/group/epilepsy-kids/
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