- A Journey to Hydrocephalus
A parent's description of the diagnosis and ongoing adventure of her daughter's life with this disorder. http://www.geocities.com/Wellesley/8881/index.html - A Miracle Named Kerri
Personal story of Kerri's experiences with congenital hydrocephalus, shunting and a Craniectomy. Photo gallery and poems. http://www.geocities.com/Heartland/Flats/2932/ - Andrew and Anna Fuller
Family pictures and stories by Andrew. Highlights about his little sister, Anna, a shunted hydrocephalic. http://andrewandanna.freeyellow.com/Fuller.html - Ashley Nicole Schmit
Memorial tribute in memory of her sister who was born with hydrocephalus. http://www.joinme.net/babyashley/ - Julia's Journey
Support and information for families who have children or loved ones with the disabling birth defect spina bifida and hydrocephalus. http://www.juliasjourney.com/ - Kori's Story
Personal information, photos, and updates about Kori, diagnosed with hydrocephalus and shunted at age two months. http://www.geocities.com/Heartland/Estates/7209/ - Kristen's Hydrocephalus Links and Information
Kristen, a young woman living with congenital Hydrocephalus shares her journey to adulthood. Features links to medical resources, support groups, and HYCEPH-L, an e-mail discussion list. http://www.hydrocephaly.com/ - Laura's Story with her Hydrocephalus
Features their little daughter, Laura. She was born premature, had IVH and hydrocephalus. Read her story and meet the family. http://www.geocities.com/lauratina2002/redhellolaura.html - Mafalda's Homepage
Experiences with hydrocephalic daughter, information, photos and updates on progress. (English/Portuguese) http://www.geocities.com/HotSprings/4000/ - Melissa's Journey
A personal story of the hope and courage of a young woman's struggles against hydrocephalus and over 40 shunt revisions. http://members.aol.com/mama1nowak/index.html - Rhianna Allen Memorial
A memorial to a special little girl and her dealings with premature birth, hydrocephalus, ventriculoperitoneal shunt(or VP shunts), and premature death. http://www.rhiannaallen.org - Ryan's Hydrocephalus Page
Details the birth, development, and special needs of this special boy born in 1998 with hydrocephalus. http://www.ryanspage.org.uk - Sarah's Story
Accounts a parents' experiences with their daughter through diagnosis and treatments during her first two years. http://www.angelfire.com/nj3/noonoo - Simon Allanach's Hydrocephalus
Simon's interests and information about hydrocephalus and personal experiences. Relates causes, treatments, complications, and procedures. http://www.geocities.com/TimesSquare/Dungeon/6214/index2.htm - Steve Drake's Hydrocephalus
Writings, presentations, reports and bibliographical account of living with hydrocephalus. Resources and related information available. http://web.syr.edu/~sndrake/hyd1.htm - The Rafel's
Family photos, stories and updates. Sarah, oldest of three girls, was born premature and lives with hydrocephalus; shunted since one month old. http://www.geocities.com/Heartland/Hills/5566/index.htm - The Riccio Boys
Photos and family updates on the Riccio brothers. Family updates and hydrocephalus treatment information. http://hometown.aol.com/CARiccio/index.html - Tim and Hydrocephalus
Features their son who was born with hydrocephalus and oesophagusatresi. http://hydro92.homestead.com/hydrochat.html - VP Shunt Implant - It's a Lifetime Thing
A mother's advice and personal story of raising her daughter. Information and descriptions of diagnostic tests and treatments for hydrocephalus. http://www.angelfire.com/tn/catz2many/index.html |