Ara Parseghian Medical Research Foundation About this foundation whose goal is to find a cure for the devastating Niemann-Pick Type C disease. http://www.parseghian.org/apmrfweb/
National Niemann-Pick Disease Foundation Provides in depth education and support for patients and families. Also information about the foundation itself. http://www.nnpdf.org/
Niemann-Pick Disease Information sheet on this disease including what it is, treatment, prognosis and research being done. http://www.ninds.nih.gov/health_and_medical/disorders/niemann.doc.htm