National Tay-Sachs and Allied Diseases Association An organization offering support and programs geared to families affected by Tay-Sachs Disease and over 40 other fatal degenerative genetic disorders. http://www.ntsad.org/
Tay-Sachs Disease Information sheet on this disease addressing what it is, treatment and prognosis. http://www.ninds.nih.gov/health_and_medical/disorders/taysachs_doc.htm