- Barth Syndrome Foundation
Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder.
http://www.barthsyndrome.org
- Clinical Mass Spectrometry Laboratory
An article about Barth Syndrome with a description, clinical manifestations, etiology, epidemiology, diagnosis, prognosis and management.
http://www.med.jhu.edu/CMSL/Barth_Summary.html
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