- Chase's Story
Personal account of one child's experience of this condition. Includes photographs.
http://www.pierrerobin.com
- NORD - Pierre Robin Syndrome
Sample report, plus links to organisations. [Fee required for full report]
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pierre%20Robin%20Syndrome
- Pierre Robin Network
Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.
http://www.pierrerobin.org
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